Sunday, June 16, 2013

Big Day Tomorrow

Tomorrow is Sutton's CT scan.  Up until today, I have felt really great about it.  But now that it's almost here, I'm starting to get nervous.  I've kept my promise to Dr. O to not Google anything, which has been good for me.  I've talked with lots of people about diaphragmatic hernias and have gotten positive feedback.  That's all well and good, but my fear is that it is a hernia AND something with his lung.  I'm no doctor and I certainly wouldn't even begin to guess what lung issue it could be.  All I know is that the x-ray the pediatrician took and the one the pulmonologist took looked different... to me at least.  The pediatrician's showed a hazy area in his lung, but the pulmonologist's focused on his stomach which I did not see in the other X-ray.

I just don't want our little guy to have any more health issues.  I know we are so lucky to be able to make it out of the NICU fairly unscathed, but I just wonder when we can breath a little ( and yes, I know a parent never stops worrying, I just want to get to the normal worrying part:)).  A good friend reminded me that God has been in control this entire time, and I need to let go a bit.  It also helps that one of God's angels on Earth, Dr. O'Connor, is only a phone call away.

Here's how tomorrow should go down. We will leave Columbia around 5:30 am- Grandma Lulu has been a rock star yet again and will be hanging out with Lawson all day. Suttie will have his last bottle at 8:15.  He will have his fluoroscopy at 10 and start drinking the disgusting "color block" for his CT scan at 11:30.  We will meet with the sedation specialist at 2 and he will have his CT scan at 3.  Unfortunately, he will need to be intubated to protect his airway from the gross liquid he has to drink.  This is unsettling for us as the last time he was intubated (inguinal hernia surgery) it took nearly 12 hours for him to get extubated.  Granted, he was still 4 weeks shy if his due date and still on a bit of oxygen.  Because of his age and our distance from the hospital, they have reserved a hospital bed for him as a precautionary measure- hopefully he won't need it.

Please pray for a complication-free CT scan and for Sutton to bounce back quickly from his intubation.  Please pray also that the doctor's are able to definitively diagnose this issue(s) and have a swift plan of action for treatment.

Now on to some fun stuff!:). The boys have been super into books lately.  They really like listening to me read and looking at the pictures.  A couple of times I have been reading to Lawson while Sutton is still sleeping only to look over and see Sutton with a big old grin.  They are both smiling a ton which Andrew and I LOVE!  Lawson has been consistent with sleeping through the night for over a month now.  Sutton has had a few nights here and there where he has slept through as well.  Last night was the first night both boys slept in the nursery!  They both fell asleep by 9 and were awake by 6!!  I thought I should feel super rested, but I think I kept waking up to look at the monitor and make sure I wasn't missing someone's cries.  Here are some pictures of these cuties:

We love Corduroy!  

Visit to the doctor.
You lookin' at me?  (S)
Ohmygoshsocute (L)

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